Tharon’s Thoughts : The Connection Between the Nervous System and the Brain

July 16, 2026




By Tharon

Neurodivergent Consultant at helpz



The Connection Between the Nervous System and the Brain 


Most people don’t realise just how closely the nervous system and the body are connected. This is true even for neurotypicals, but especially for neurodivergents where the gap between nervous system and body is a lot closer and vastly underestimated. What we think, feel, and experience is not just “in our heads”, it shows up physically, shaping our energy, our sleep, our digestion, and even how safe or unsafe we feel in the world. 


For many autistic people, the nervous system operates in a near constant state of alert - I call this battle mode. This is not because something is “wrong”, but because the environment often feels unpredictable, overwhelming, or demanding in ways that do not align with how our brains are wired. When you are repeatedly corrected, monitored, or told to suppress natural behaviours, the nervous system begins to interpret the world as a place of ongoing threat. Over time, this creates what can be described as a high neural load, meaning the brain is working harder simply to get through everyday experiences and therefore using more energy (Spoon Theory). 


Although autistic and neurotypical people have the same underlying regulation needs, the autistic individual is not able to access the regulation tools that come naturally to the neurotypical person. When typical strategies are unavailable, the nervous system turns to what is accessible. This is where stimming becomes not just important, but essential. 


Self stimming, short for self stimulatory behaviour, refers to repetitive movements or sounds that help regulate sensory input, emotions, and arousal levels within the nervous system. It can look like tapping a foot, clicking a pen, rocking, hand flapping, humming, or repeating sounds. Those are the common ones, but it can also look like hitting yourself in the head, hitting your head against a brick wall, or biting and scratching yourself until you bleed. While this is indeed an attempt at self-regulation, it is extreme and unhealthy. This is the nervous system at a desperate edge, an attempt to control the internal chaos and support regulation back to a controllable limit. It can also be more internal, such as silently repeating phrases in the mind, which is known as internal echolalia. While some stimming may appear unusual to others, it serves a very real purpose. It helps the nervous system find balance. 


Masking is the process of consciously or unconsciously suppressing these natural responses in order to meet social expectations. When someone masks, they often push their physical and sensory needs inward. As an example, I am often suppressing my visceral need to take my shirt off. This does not make the need disappear, it simply redirects it. The body still seeks regulation, and this can lead to less visible forms of stimming and/or an eventual build up that results in overwhelm. Over time, masking can also have physical effects, contributing to sleep difficulties, digestive changes, restraint collapse, increased heart rate, chronic tension and other mental or physical health repercussions. 


Anxiety in autistic people often looks different from what is typically recognised. Situations that may not seem stressful to others can be profoundly overwhelming due to sensory sensitivity, unpredictability, or social pressure. Being told to “tone it down” or to behave in a certain way can actually increase the anxiety, reinforcing the need to mask and further straining the nervous system. This is called Distinct Anxiety and is unique to autism. These patterns often begin early in life. Autistic individuals are born with these differences, but early on lack the internal awareness or communication skills to express their needs. When those needs go unmet, the body responds through distress signals such as intensified stimming or in extreme cases, meltdowns. 


Self regulation is the nervous system’s attempt to return to a state of balance. However, for someone experiencing constant sensory input, that balance can be difficult to achieve. Even in a quiet room, the brain is still processing layers of sound, movement, and sensation that others easily filter out. This ongoing input creates a sense of internal chaos, where the body struggles to find stillness and the mind never shuts up, even when we sleep. 


When the nervous system perceives ongoing threat, it moves into survival responses, commonly described as fight, flight, or freeze. The freeze response, often described in autistic experiences as shutdown, is when the system becomes overwhelmed and essentially powers down to protect itself. Another related experience is restraint collapse, where a person holds themselves together throughout the day and then, once in a safe environment, experiences an intense drop in energy and functionality. This can look like being unable to move, think clearly, or engage after getting home. 


Sleep can also be impacted. Many neurodivergent individuals describe not feeling rested, even after a full night in bed. The nervous system remains active when it should be settling, leading to restless sleep, muscle tension, or sudden jolts awake. These experiences are linked to the body remaining on alert, even when the environment is safe. 


The connection between the brain and the body is also deeply influenced by the gut. Around ninety to ninety five percent of serotonin, a chemical involved in mood, sleep, and emotional regulation, is produced in the digestive system. The gut contains trillions of microbes that communicate with the brain through what is known as the gut brain axis. These signals influence mood, stress responses, inflammation, and behaviour. Estimates vary widely across studies, but gastrointestinal symptoms are reported substantially more often in autistic individuals than in the general population, with many studies finding prevalence rates between about 40% and 70%.  While research is still emerging, there is growing interest in how gut health may relate to autistic experiences, particularly where gastrointestinal differences are present. 

 

Because regulation can be difficult to access, some individuals turn to external supports, including specific foods, caffeine, or other substances, in an attempt to manage attention, calm the mind, or lift mood. This reflects the nervous system seeking relief from ongoing intensity. It is not about poor choices, but about the drive to find quiet in a system that rarely rests. 


When regulation does occur, it can feel profound. It is often described as moving from chaos to calm, from a storm to stillness. This sense of quiet is not just preferred, it is necessary. Solitude can play an important role here. Being alone reduces sensory and social input, allowing the nervous system to settle. Even in the presence of loved ones, that need for space still exists without reflecting a lack of connection or care. 


Relationships can become complex within this context. People may unmask with those they trust, expressing more of their authentic selves.


However, this can sometimes be misunderstood, particularly if others are not familiar with neurodivergent communication and expression.


Misinterpretation can lead to disconnection, reinforcing feelings of being unseen, unheard and misunderstood. 


Many autistic individuals also carry a deep sense of grief linked to years of masking and not being fully accepted as they are. This can make authentic connection both deeply desired and difficult to maintain. In this context, animals often become powerful sources of comfort. Pets provide consistent, non judgemental companionship. Their presence can support regulation, offering rhythm, warmth, and predictability. Even something as simple as the sound and vibration of a cat purring has been associated with calming effects on the nervous system. 


The relationship between the nervous system and the body is complex and deeply interconnected. Understanding these experiences through a neuroaffirming lens shifts the narrative from one of deficit to one of difference. There is still much to explore, and as understanding grows, so too does the opportunity to support regulation, wellbeing, and authentic ways of being. 

Understanding what the nervous system may be communicating is an important step towards providing support that feels safe, respectful and genuinely neuroaffirming. If you or someone you support could benefit from guidance tailored to their individual needs,
get in touch with the helpz team to learn how we can help.


News & Insights

Check Our Latest Resources

July 17, 2026
Congratulations Mitch – Behaviour Support Specialist of the Year Nominee
July 17, 2026
Younger Onset Dementia When most people hear the word dementia , they often picture an older person experiencing memory difficulties. However, dementia can also affect people under the age of 65, a condition known as Younger Onset Dementia (YOD) . In Australia, thousands of people are living with younger onset dementia, and the number is expected to continue increasing over coming decades. A diagnosis of younger onset dementia can be particularly challenging because it often occurs during a busy stage of life. Individuals may still be working, raising children, managing mortgages, maintaining relationships, and actively participating in their communities. As a result, the impact extends beyond the individual to affect families, workplaces, and support networks. What Is Younger Onset Dementia? Younger onset dementia is not a specific type of dementia. Rather, it is a term used when symptoms of dementia develop before the age of 65. Like older onset dementia, it can result from various conditions, including Alzheimer's disease, vascular dementia, frontotemporal dementia, Lewy body dementia, and other neurological disorders. Interestingly, memory loss is not always the first sign. Depending on the type of dementia, changes in personality, behaviour, decision-making, communication, emotional regulation, or problem-solving skills may appear before noticeable memory difficulties. This can make obtaining an accurate diagnosis more complex, as symptoms are sometimes mistaken for stress, depression, burnout, or other mental health concerns. Fascinating Facts About Younger Onset Dementia Dementia Is Not a Normal Part of Ageing One of the most common misconceptions about dementia is that it is an inevitable part of getting older. In reality, dementia is caused by diseases affecting the brain and can occur at almost any age. Symptoms Vary Significantly Between Individuals No two experiences of dementia are exactly the same. Some people may experience significant communication difficulties, while others may demonstrate changes in judgement, behaviour, social awareness, or emotional control. The person's age, lifestyle, diagnosis, support network, and overall health all influence how dementia presents. Early Signs May Be Behavioural Rather Than Cognitive For some individuals, particularly those with frontotemporal dementia, noticeable changes in behaviour or personality may occur before memory impairment becomes apparent. Family members often report that their loved one "just isn't themselves anymore" long before dementia is suspected. People Can Continue Living Meaningful Lives A diagnosis of younger onset dementia does not mean a person immediately loses their independence or quality of life. Many individuals continue participating in hobbies, employment, social activities, community events, and meaningful relationships for years following diagnosis when appropriate supports are in place. Understanding Behaviours of Concern As dementia affects different areas of the brain, individuals may experience difficulties interpreting information, communicating needs, regulating emotions, or responding to environmental demands. Behaviours of concern often emerge when a person is attempting to communicate an unmet need, discomfort, confusion, fear, or frustration. Rather than viewing these behaviours as deliberate or challenging, it is often more helpful to ask: "What is this person trying to tell us?" Agitation and Restlessness Agitation may present as pacing, fidgeting, repeatedly moving around an environment, or appearing unsettled. These behaviours may be linked to pain, anxiety, fatigue, boredom, sensory overload, or changes in routine. Verbal Aggression Some individuals may yell, swear, accuse others, or become argumentative. Often, these responses occur when the person is confused, frightened, unable to express themselves effectively, or feeling misunderstood. Physical Aggression Physical aggression, such as hitting, pushing, kicking, or throwing objects, is frequently associated with a perception of threat or loss of control. The individual may be attempting to protect themselves from something they do not understand or are unable to process. Repetitive Questions and Behaviours Repeating questions or actions can be frustrating for caregivers, but these behaviours often reflect memory difficulties, anxiety, or a desire for reassurance. The behaviour may help the individual feel safe and oriented in their environment. Withdrawal and Loss of Motivation Not all behaviours of concern are outwardly disruptive. Some people become increasingly withdrawn, lose interest in activities they once enjoyed, or disengage from social interactions. This can be related to changes in cognition, mood, confidence, or communication abilities. Wandering and Exit-Seeking A person may attempt to leave a home, workplace, or support setting because they are searching for familiarity, purpose, routine, or a place they associate with safety. These behaviours often reflect unmet emotional or environmental needs rather than intentional non-compliance. How Positive Behaviour Support Can Help Positive Behaviour Support (PBS) offers a person-centred framework for understanding and responding to behaviours of concern in individuals living with younger onset dementia. Rather than focusing on eliminating behaviours, PBS seeks to understand the function of the behaviour and improve the person's quality of life. Understanding the Reason Behind the Behaviour Behaviour support practitioners work collaboratively with the individual, family members, healthcare professionals, and support workers to identify factors contributing to distress. This includes examining: Environmental triggers Communication difficulties Physical health concerns Pain and discomfort Sensory sensitivities Changes in routine Social and emotional factors Understanding these influences allows support teams to develop proactive strategies that reduce distress before behaviours escalate. Improving Communication As dementia progresses, communication can become increasingly difficult. Positive Behaviour Support can assist by introducing strategies such as: Using clear and simple language Allowing additional processing time Reducing competing distractions Using visual supports and prompts Maintaining consistent communication approaches across support networks When communication improves, frustration and distress often decrease. Creating Supportive Environments The physical environment can significantly influence behaviour. Small modifications can produce meaningful improvements in wellbeing, including: Reducing noise and sensory overload Improving lighting and visibility Using visual cues and signage Supporting predictable routines Creating calm and familiar spaces These adjustments help individuals feel safer, more confident, and better able to navigate their daily lives. Promoting Meaningful Engagement People living with younger onset dementia continue to have goals, interests, strengths, and preferences. Behaviour support actively promotes meaningful participation in activities that provide: Purpose Connection Achievement Choice Enjoyment Maintaining these opportunities can reduce boredom, improve emotional wellbeing, and enhance quality of life. Supporting Families and Care Teams Families and support staff often experience significant stress when behaviours of concern emerge. Behaviour support practitioners provide education, coaching, and practical strategies that help supporters respond consistently, confidently, and compassionately while preserving the dignity and rights of the person living with dementia. Looking Beyond the Behaviour Perhaps the most important principle when supporting someone with younger onset dementia is recognising that behaviour is a form of communication. By moving beyond the behaviour itself and exploring the person's experiences, emotions, and unmet needs, we create opportunities for connection, understanding, and meaningful support. Positive Behaviour Support provides a framework for achieving this by focusing on the individual rather than the diagnosis. With the right supports, people living with younger onset dementia can continue to enjoy fulfilling lives, maintain important relationships, and participate in the activities that matter most to them. Supporting someone living with dementia means looking beyond their diagnosis or behaviour to understand their identity, experiences, relationships and unmet needs. In our article, Dementia Care: The Whole Person Is the Whole Point , we explore how a wellbeing-led approach can help us respond to distress with greater curiosity, compassion and respect. If you or someone you support is living with younger onset dementia and could benefit from person-centred Positive Behaviour Support, our team is here to help. Get in touch with helpz to discuss how we can support the person, their family and care team. 
July 17, 2026
How small, intentional actions can create more inclusive communities where everyone feels welcomed, valued and connected. Belonging is one of our most fundamental human needs. We all want to feel welcomed, valued, respected, and connected to the people and places around us. Yet for many people with disability, genuine inclusion can still be difficult to find. While awareness of disability has grown significantly in recent years, inclusion is about much more than simply opening the door. True inclusion means creating environments where people can actively participate, contribute, build relationships, and feel like they are a valued part of their community. At Helpz, we see every day how powerful belonging can be. Whether it's a student making friends at school, an adult joining a community group, or a person gaining confidence to participate in activities they enjoy, meaningful inclusion can have a positive impact on wellbeing, independence, and quality of life. Inclusion Starts with Small Actions The good news is that creating inclusive environments doesn't always require major changes. Often, the most meaningful improvements come from small, intentional actions that help people feel welcome and supported. Organisations can promote inclusion by: Using clear and accessible communication. Ensuring physical spaces are easy to navigate. Offering flexibility in how people participate. Creating opportunities for social connection and relationship-building. Asking people what support they need rather than making assumptions. Celebrating diversity and recognising individual strengths. These simple steps can make a significant difference to a person's experience and sense of belonging. Moving Beyond Accessibility Accessibility is essential, but belonging goes a step further. A wheelchair ramp may enable someone to enter a building, but belonging is about whether they feel included once they get inside. It's about being invited to participate, having a voice in decisions, being recognised for talents and contributions, and forming meaningful relationships. When organisations focus on belonging, they create environments where everyone has opportunities not just to attend, but to thrive. The Benefits of Inclusive Communities Inclusive organisations benefit everyone, not only people with disability. Diverse communities foster stronger relationships, encourage innovation, and create richer experiences for all members. When people with different backgrounds, abilities, and perspectives come together, communities become more connected, compassionate, and resilient. Looking Forward As we celebrate five years of Helpz, we are reminded that meaningful inclusion is a journey we all share. Every conversation, invitation, and act of understanding helps build communities where people feel seen, valued, and connected. Because at the heart of inclusion is a simple belief: everyone deserves the opportunity to belong. Creating a more inclusive world doesn't happen through grand gestures alone, it happens through everyday actions that ensure every person has the chance to participate, contribute, and thrive. Together, we can create communities where everyone feels they truly belong. A sense of belonging is especially important during childhood, shaping how children connect, participate and feel at school. In our artic le, Why Friendships Matter: Helping Children Feel They Belong at School , we explore how friendships and peer connection can support c hildren’s confidence, wellbeing and engagement in learning. At helpz, we work alongside individuals, families and support networks to create opportunities for greater participation, connection and independence. If you or someone you know could benefit from personalised support to feel more connected within their community, get in touch with our team.