The waiting game - what is the real cost of long wait times?

September 11, 2023

The Dilemma of Long Wait Lists: Impact on Clinical Diagnosis, Treatment, and Outcomes for NDIS Participants Accessing Allied Health Services in Australia


Australia's National Disability Insurance Scheme (NDIS) has been a significant step towards improving the lives of individuals with disabilities. However, the scheme has faced challenges, with one of the most pressing issues being long wait lists for accessing allied health services. This article examines the impact of these prolonged wait times on clinical diagnosis, treatment, and outcomes for participants of the NDIS in Australia.

 

The NDIS and Allied Health Services


The NDIS, launched in 2013, aims to provide personalized support and funding to Australians with disabilities. Allied health services, which include physiotherapy, occupational therapy, speech therapy, and psychology, play a crucial role in supporting participants by improving their physical, cognitive, and emotional well-being.


The Waiting Game


Despite the positive intentions of the NDIS, long wait lists have emerged as a major challenge for participants seeking allied health services. The wait times can range from several weeks to several months, leaving individuals without the essential interventions they require.


Clinical impacts for participants due to long wait lists


Impact on Clinical Diagnosis

Prompt and accurate clinical diagnosis is vital for individuals with disabilities. Early intervention can lead to better outcomes and improve the individual's quality of life. Current long wait lists hinder the timely assessment of participants, delaying their access to vital diagnostic evaluations. Valuable time is lost, and the window for early intervention may close, leading to potential setbacks in the individual's progress and development.


Impact on Treatment

Effective and timely treatment is key to managing disabilities and achieving the best possible outcomes. Prolonged wait times for allied health services result in delayed treatment plans, which can exacerbate the existing issues faced by NDIS participants. For example, a child with speech and language delays may experience significant delays in communication development due to extended waiting periods for speech therapy.


A lack of access to timely intervention can also lead to increased reliance on acute medical services, resulting in higher healthcare costs for both individuals and the system as a whole.


Impact on Outcomes

Delayed diagnosis and treatment can impede progress in areas such as mobility, communication, socialisation, and overall functional independence.


Prolonged waiting can cause frustration, stress, and anxiety for both the individual and their families. The emotional toll of waiting for essential services can lead to a decline in mental health, which may further impact the overall well-being of the participants.


Addressing the Issue


Recognising the critical nature of timely access to allied health services, several measures can be taken to alleviate the burden of long wait lists:


Increased Funding: Adequate funding allocation for allied health services under the NDIS is necessary to accommodate the growing demand and reduce wait times.


Workforce Expansion: Investing in the recruitment and training of allied health professionals can help meet the rising demand for services and address workforce shortages in certain regions.


Telehealth Services: Implementing telehealth services can provide participants with remote access to allied health professionals, reducing geographical barriers and easing the burden on physical facilities.


Early Intervention Focus: Prioritising early intervention services can help identify and address disabilities at an early stage, potentially reducing the need for more intensive and costly interventions later.


Long wait lists for accessing allied health services under the NDIS in Australia pose significant challenges for participants. Delayed clinical diagnosis, treatment, and outcomes can have far-reaching effects on the well-being and development of individuals with disabilities.


Impact on Funding for Participants


Long wait lists for allied health services not only affect the clinical aspects of participants' lives but also have significant implications for their funding budgets under the NDIS. The delayed access to essential services can lead to unanticipated financial burdens for both the participants and the NDIS system.


Increased Costs for Participants

As participants wait for their turn to receive allied health services, they might resort to seeking private services to fill the gap. Private services are often expensive and not covered by the NDIS, leading to out-of-pocket expenses for the participants. This can quickly deplete their allocated funding budgets, leaving limited funds available for other necessary supports and interventions.


Funding Unutilised or Misutilised

Participants might find it challenging to utilize their funding effectively during the waiting period. Funds allocated for specific allied health services may remain unused or may be used on less critical needs, temporarily patching immediate concerns. When the essential services are eventually accessed, participants may face budget constraints to cater to their ongoing needs and therapies.


Reduced Capacity to Access Other Supports

Long wait lists can significantly impact participants' ability to access other important supports available under the NDIS. For example, participants who are unable to access timely occupational therapy services might face difficulties in developing essential life skills and independence, perpetuating reliance on the NDIS system.


Increased Pressure on the NDIS Budget

The NDIS, being a government-funded scheme, allocates specific budgets for each participant based on their assessed needs. Prolonged wait times can lead to inefficiencies in service delivery, resulting in delays and increased costs for the NDIS. Additionally, the increased demand for services due to longer wait lists may require additional funding allocation to meet the growing needs of participants, straining the overall NDIS budget.


Addressing Funding Challenges


To mitigate the impact on funding budgets for participants accessing allied health services under the NDIS, several strategies can be implemented:


Transparent Communication: Regular and transparent communication with participants about the status of their services and expected wait times can help them plan their budgets accordingly.


Provisional Funding: Exploring the possibility of providing provisional funding for essential services during the waiting period can help participants access necessary supports without compromising their overall budgets.


Prioritisation of Urgent Cases: Implementing a system that prioritizes urgent and critical cases can ensure that individuals with pressing needs receive services without extended waiting periods.


Reviewing Funding Models: Continuous evaluation and improvement of funding models can help identify areas where adjustments are needed to better support participants facing prolonged wait times.


Final thoughts


Long wait lists for allied health services have a profound impact on the funding budgets of NDIS participants, creating financial challenges and limiting access to crucial supports. Ensuring timely access to these services is not only essential for improving clinical outcomes but also for optimising the utilisation of allocated funds. By addressing the issue of long wait lists and implementing strategies to mitigate its impact, the NDIS can better support individuals with disabilities in Australia, leading to improved overall well-being and quality of life.


News & Insights

Check Our Latest Resources

June 6, 2025
From early check-ups to mental health conversations, Men’s Health Week (June 10–16) is a chance to remind ourselves—and the men in our lives—that it’s okay to take health seriously. It’s okay to talk. It’s okay to ask for support. At helpz, we know that health looks different for everyone. For boys, teens, and men with disability or psychosocial challenges, support isn’t always easy to find—or to ask for. But the right allied health care can make all the difference. Men face unique challenges According to the Australian Institute of Health and Welfare: Men are more likely to die by suicide than women, but are far less likely to seek help 1 Males with a disability experience higher rates of psychological distress than males without disability 2 Many men delay accessing health services, especially when it comes to emotional or mental health concerns The reasons are complex—social expectations, stigma, access issues, or simply not knowing where to turn. That’s where we come in. Breaking the stigma Our team at helpz supports boys and men across all life stages—from children with developmental delay to adult participants with autism, intellectual disability, or psychosocial conditions. We take a person-centred, non-judgemental approach and meet people where they are. Sometimes that looks like: Behaviour support that helps young men manage emotions and build connection Occupational therapy to support daily living skills and social confidence Psychology sessions focused on anxiety, self-worth, or relationship challenges Mental health OT that helps manage routine, motivation, and life transitions We listen first. We build trust. And we never push someone to be anything other than who they are. Talking early, talking often Whether it’s a father, a son, a friend or a participant—checking in can be powerful. Many men don’t know that therapy can be practical, respectful and empowering. At helpz, we believe in early intervention and consistent support. We work with families, carers, support coordinators and men themselves to tailor care that builds real outcomes: resilience, independence, and wellbeing. A safe place to ask for help You don’t need to wait for a crisis to get help. Men’s Health Week is a reminder that seeking support is a sign of strength—not weakness. If you or someone you support could benefit from allied health services designed with your goals in mind, we’re here for you. 
June 6, 2025
Being seen and supported: Why LGBTQIA+ inclusion matters in allied health Every person deserves to feel safe, understood and valued—especially in the spaces where they seek support. For many LGBTQIA+ Australians, however, healthcare and support settings can be places of misunderstanding, misgendering or exclusion. At helpz, we’re committed to changing that. Why inclusion matters in allied health Healthcare and therapy should be safe spaces—but for LGBTQIA+ individuals, they too often are not. Research shows that LGBTQIA+ people are more likely to avoid or delay seeking medical or allied health care due to fear of discrimination or past negative experiences. When care is not inclusive or affirming, people may feel unsafe, unsupported or unseen. And for LGBTQIA+ individuals living with disability, neurodivergence or mental health challenges, this compounds layers of vulnerability. That’s why affirming care is not optional—it’s essential. Our commitment to inclusive practice At helpz, we recognise that people bring many parts of themselves into the room. Gender identity, sexuality, neurodivergence, cultural background, trauma history, disability—all of these are part of the whole person. Our clinicians are trained in neuroaffirming and trauma-informed approaches and are committed to ongoing learning around inclusive practice. We support LGBTQIA+ participants with a wide range of goals, from exploring independence and communication to managing anxiety or navigating relationships. That might mean a psychologist offering gender-affirming mental health support, or an occupational therapist helping someone feel more confident in everyday activities. Our commitment includes: Respecting pronouns and preferred names Creating visibly inclusive spaces (e.g., rainbow badges, inclusive language) Continual staff education and reflective practice Partnering with LGBTQIA+ organisations where relevant Understanding intersectionality We work with many participants whose identities sit at the intersection of LGBTQIA+, neurodivergent and disabled experiences. For example, an autistic non-binary young person may experience sensory overwhelm, social anxiety, and fear of discrimination all at once. Our job is to listen deeply, collaborate respectfully, and co-design supports that empower—not pathologise. By acknowledging the unique experiences of each person, we create space for genuine connection and progress. What inclusive care can look like Inclusive allied health is more than a set of policies. It’s a practice of compassion and curiosity, of checking our assumptions and leading with respect. For example, our practitioners might: Ask and confirm someone’s pronouns, then use them correctly Understand how dysphoria might affect sensory needs or social situations Help a young person rehearse coming out conversations in a supportive space Work with families to create affirming environments at home Respect and support someone’s journey—wherever they are on it Looking ahead: support that celebrates every person This Pride Month, and every month, we celebrate the LGBTQIA+ people we support—and the courage it takes to show up as yourself in a world that doesn’t always make it easy. We believe in building systems of support that truly reflect the diversity of the people they serve. That means listening, learning, and growing—together. 
June 6, 2025
Managing your NDIS budget can be tricky – especially when all your funding arrives at once. That’s why the NDIS is introducing funding periods from 19 May 2025 to help you better manage your supports across the life of your plan. So what’s changing? And how will it affect you? Let’s break it down. What are funding periods? Funding periods are a new way of releasing your NDIS funding in smaller chunks (usually every 3 months). This gives you more flexibility while helping you make sure your funding lasts for your whole plan. You’ll still receive the same total amount of funding – the only change is when you can access it. Why is this happening? The goal is to: make sure supports are available when you need them reduce the chance of running out of funds too early It also helps people track their spending more easily using the my NDIS app or participant portal. What do I need to do? Nothing will change until your next new or reassessed plan. When that happens, you’ll have a chance to talk to the NDIA about your circumstances and get support to understand the changes. Once funding periods apply, you’ll be able to see: how much funding you have how much you’ve spent when your next funds will be released Any unused funding within a funding period will roll over to the next one – but it won’t carry over into a brand new plan. So budgeting well is still really important. What can I spend NDIS funds on? It’s also important to remember the NDIS has clear rules about what it can and can’t fund. These rules were updated last year and split into two lists: supports the NDIS can fund supports the NDIS cannot fund Before you spend your funding, check that the support is part of your plan and aligns with these rules. If you claim something that isn’t approved, you might need to pay it back. You can read the full lists at What does the NDIS fund? What if my situation changes? You can always request a change to your plan if your needs change – and your current plan will stay the same until it’s reassessed. Need more info? You can find all the details about funding periods, what you can claim, and how to manage your plan at the official NDIS website .  Or check out their FAQs on legislation and sign up to the NDIS newsletter to stay in the loop.