Understanding Parkinson's: Insights and Support Through helpz
Clair Kauter • April 10, 2024
World Parkinson's Day, April 11th, serves as a significant reminder of the ongoing journey to understand and manage Parkinson's disease—a progressive neurological condition that affects movement. At helpz, we recognise the importance of providing comprehensive support and education about Parkinson's, to help offer assistance to people navigating this condition and their loved ones.
Understanding Parkinson's Disease:
Parkinson's disease affects the control of body movements and can vary significantly between individuals. The condition stems from the degeneration of nerve cells in the brain, particularly those in a region called the substantia nigra, which leads to a depletion of dopamine. Symptoms can range from tremors, rigidity, and slowness of movement to non-motor symptoms such as sleep disturbances and loss of sense of smell.
The disease's progression and the symptoms' severity vary among individuals, making personalised care and management crucial. Parkinson's in Australia has more than doubled from previous estimates. According to Fight Parkinson’s, there are currently about 219,000 people living with Parkinson’s nationwide, up from 100,000 reported in 2015, with up to 50 Australians being diagnosed each year. This rapid increase is a trend seen not only in Australia but globally, highlighting the need for enhanced research, support, and care.
Young Onset Parkinson's, affecting individuals in their 20’s to 50’s, accounts for between 10% and 20% of all Parkinson's cases.
The disease imposes a substantial economic and healthcare burden, with costs exceeding $10 billion annually.
helpz's Role in Supporting those with Parkinson's:
At helpz, we're dedicated to supporting those affected by Parkinson's disease through personalised, in-home NDIS services that cater to the unique needs of each Participant. Our team of skilled clinicians, including Occupational Therapists, Physiotherapists, and Speech Pathologists and Behaviour Support Practitioners, work collaboratively to design care plans that address both motor and non-motor symptoms, ensuring a holistic approach to management.
Our services are guided by the latest research and practices in the field, aiming to empower our Participants to manage their symptoms effectively and maintain the highest quality of life possible. We emphasise the importance of early intervention, ongoing education, and the use of assistive technologies to enhance independence and well-being.
Educational Resources and Support:
- Parkinson's Australia offers comprehensive resources, including information sheets on living well with Parkinson's, medication and treatment options, and support for carers.
- healthdirect and the Better Health Channel provide detailed insights into the symptoms, causes, diagnosis, and management of Parkinson's disease, including how it affects mental health and relationships.
- The Brain Foundation and Shake It Up Australia Foundation share the latest research and statistical data on Parkinson's, emphasising the importance of personalised treatment plans and the role of multidisciplinary therapy.
As we observe World Parkinson's Day, let's renew our commitment to supporting those affected by Parkinson's disease through education, advocacy, and personalised care.
For more information on Parkinson's disease and the support available, please visit the resources mentioned above. To learn more about how helpz can assist you or your loved ones, contact us here.
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This Occupational Therapy Awareness Month, we're proud to celebrate the dedicated Occupational Therapists who support participants across helpz. Occupational Therapists play a vital role in helping people build independence, develop meaningful skills, overcome barriers, and participate in the activities that matter most to them. Their work extends far beyond assessments and recommendations, empowering individuals to achieve their goals and live fulfilling lives. At helpz, our Occupational Therapy team brings together a wealth of experience across mental health, physical disability, paediatrics, assistive technology, home modifications, early intervention, and capacity building. This month, we're shining a spotlight on some of the incredible clinicians who make up our growing team. Tran Vu | Senior Occupational Therapist & Practice Lead As helpz's Occupational Therapy Practice Lead, Tran Vu provides clinical leadership and support to our growing OT team while continuing to work directly with participants across a range of settings. Many participants and families may first hear from Tran during the onboarding process, where she helps ensure they are connected with the right supports to meet their individual needs. In addition to being an experienced Occupational Therapist , Tran is also a registered Behaviour Support Practitioner , providing her with a unique understanding of the interaction between environment, behaviour, participation, and quality of life. Having worked within the disability sector for more than nine years, Tran says she feels privileged every day to support participants to achieve meaningful engagement and participation in everyday life. She is passionate about the breadth of Occupational Therapy and the positive impact it can have across all stages of life. Tran supports participants in areas including: Assistive technology assessments and recommendations Home modifications Daily living skills development Sensory processing supports Capacity building and independence Functional assessments Behaviour support-informed occupational therapy interventions Her holistic and collaborative approach helps participants build the skills, confidence, and supports needed to achieve their goals and live meaningful lives. Fatima | Senior Occupational Therapist With over 13 years of experience providing assessment, intervention, and rehabilitation services across inpatient and community public health settings, Fatima brings extensive expertise in supporting adults experiencing mental health challenges. Throughout her career, she has worked alongside people at various stages of their recovery journey, from acute care through to recovery and remission. Fatima is passionate about helping individuals develop the skills, confidence, and strategies needed to enhance their independence, wellbeing, and quality of life. Her person-centred and evidence-based approach enables her to work collaboratively with participants, families, and multidisciplinary teams to achieve meaningful outcomes. Fatima's strong mental health background allows her to take a holistic view of each participant, considering their goals, strengths, and environment when developing supports. Outside of work, Fatima enjoys spending time with her family and exploring her passion for cooking. Kylee Mischefski | Senior Occupational Therapist Based in Brisbane and the Gold Coast, Kylee Mischefski brings extensive experience across Family and Community Services and the NDIS environment. Kylee has supported people with intellectual and physical disabilities, neurodivergent individuals, and children with developmental delays throughout her career. Her areas of expertise include: Active support and capacity building across the lifespan Early childhood intervention Functional Capacity Assessments Environmental assessments Assistive technology assessments and recommendations Complex equipment and seating prescriptions Manual handling assessments and training Minor home modifications Vehicle access modifications Kylee is passionate about finding practical solutions that enhance independence and improve everyday participation for the people she supports. Cassie Smith | Senior Occupational Therapist Cassie has extensive experience supporting adults with physical disabilities through both health and disability services. Her expertise includes assistive technology, complex equipment prescription, home and vehicle modifications, manual handling assessments, and Functional Capacity Assessments. Cassie is known for her practical and participant-focused approach, helping individuals access the supports, equipment, and environments they need to maximise independence and quality of life. Eleanor Hughes | Senior Occupational Therapist With more than a decade of experience across private practice, specialist schools, early intervention settings, and academia, Eleanor Hughes brings significant paediatric expertise to helpz. Eleanor is passionate about supporting children and families through evidence-based and family-centred approaches. Her experience spans developmental assessments, early intervention, neurodiversity-affirming practice, and capacity building for children and their support networks.
National Resources Worth Knowing About Navigating disability supports can sometimes feel overwhelming. Fortunately, there are several trusted national services available to help individuals, families, and carers access information, support, and advocacy. Disability Gateway The Disability Gateway is a free Australian Government service that helps people with disability, families, carers, and support workers find trusted information, services, and support. It provides guidance across a wide range of areas including housing, employment, transport, health, education, technology, legal rights, and everyday living. [disability...way.gov.au] , [health.gov.au] Website: www.disabilitygateway.gov.au Phone: 1800 643 787 Carer Gateway Carer Gateway provides free support and services for unpaid carers across Australia. Supports may include counselling, coaching, peer support, respite options, practical resources, and assistance navigating available services. [carergateway.gov.au] , [health.gov.au] Website: www.carergateway.gov.au Phone: 1800 422 737 Autism CRC Autism CRC is Australia's national autism research centre. Their website includes evidence-informed resources, practical guides, and information for Autistic people, families, educators, and professionals. It is a valuable resource for understanding neurodiversity and current Australian research. [aspect.org.au] Website: www.autismcrc.com.au Occupational Therapy Australia Occupational Therapy Australia provides information about Occupational Therapy, professional resources, and educational material that helps people better understand the role OTs play in supporting participation, independence, and wellbeing. [otaus.com.au] , [otaus.com.au] Website: www.otaus.com.au
When most people think of allied health services, they picture sitting in a clinic room across from a therapist. Yet for many Australians, supports are increasingly being delivered through a screen, from the comfort of home. Telehealth has rapidly evolved from a temporary solution into a flexible and effective way for people to access Occupational Therapy, Behaviour Support, Psychology, Speech Pathology, and other allied health services. Research continues to demonstrate that telehealth can achieve outcomes comparable to in-person services for many assessment, coaching, consultation, and capacity-building interventions when delivered appropriately. [frontiersin.org] , [health.gov.au] But what does telehealth actually look like? It's More Personal Than People Expect One of the most common concerns people have before their first telehealth appointment is that it will feel impersonal. Interestingly, many participants report the opposite. Being at home often means people feel more relaxed and comfortable in their own environment. Therapists can also gain valuable insight into everyday routines, home setups, and real-world challenges that may not be visible in a clinic setting. Rather than removing connection, telehealth can sometimes strengthen it by allowing conversations and problem-solving to happen in the spaces where daily life actually occurs. What Happens During a Telehealth Appointment? While every service is different, a telehealth session generally looks much like an in-person appointment. Your clinician may: Discuss goals, challenges, and progress Observe activities within your home environment Provide coaching or skill-building strategies Review equipment or environmental setup Collaborate with family members, carers, or support teams Develop plans and recommendations together All you typically need is: A device with a camera and microphone A stable internet connection A quiet and comfortable space Who Can Benefit? Telehealth may be particularly beneficial for: People living in regional or remote areas Participants with mobility challenges Busy families juggling multiple appointments Individuals who feel more comfortable in familiar environments Support teams requiring collaborative meetings across locations Importantly, telehealth isn't an "all or nothing" approach. Many participants choose a combination of face-to-face and virtual appointments depending on their goals and circumstances. Getting the Most Out of Telehealth A few simple steps can help make sessions more effective: Have any questions written down beforehand. Test your technology before the appointment. Keep relevant equipment or paperwork nearby. Consider who may be helpful to attend the session. Be open with your clinician about what's working and what isn't. The most successful telehealth appointments are collaborative, practical, and tailored to the participant's needs. It's About Access, Not Distance At its heart, telehealth isn't simply about replacing face-to-face services. It's about increasing access, flexibility, and choice. Whether supporting someone in a metropolitan centre, regional town, or rural community, telehealth creates opportunities for people to receive high-quality support where they are, reducing barriers and helping them stay connected to the services that matter most. At helpz, we have seen firsthand how telehealth can support meaningful outcomes, build strong therapeutic relationships, and help participants work towards their goals, wherever they call home.
